In our previous blog post, we explored Williams Syndrome, shedding light on its unique characteristics and challenges. Today, we continue this conversation by sharing the heartfelt story of Judy Mackinnon and her son Scott, who was diagnosed with Williams Syndrome at a young age. Judy’s journey, filled with both challenges and triumphs, ultimately led her to Sunfield Howick—a place where Scott has found a nurturing and fulfilling life.

A Mother’s Journey: Judy Mackinnon Shares Her Son Scott’s Story

My son Scott was born with Williams Syndrome. Initially he was diagnosed as autistic due to his huge sensory issues, repetitive handflicking and obsessive interest in the sea. However, due to a minor heart defect, I took him to the Red Cross Children’s Hospital in Cape Town where a geneticist immediately recognized his distinctive facial features and he received his correct diagnostic label of Williams Syndrome.

Scott attended The Brown’s School Preprimary unit at 3yrs where he received world-class therapy – physio for low tone, OT for his many perceptual challenges, and  Speech Therapy.

I was part of the remedial teaching staff and was therefore bitterly disappointed when the KZN Education Dept. performed their mandatory screening for special needs entry to grade 1. Scott was categorized as Severely Mentally Retarded, despite his good language skills. I had to find Scott an alternative placement. As a working parent, I had to make difficult long-term decisions to ensure Scott was cared for with dignity and compassion for the rest of his life, and to receive appropriate skills training for independence. 

 

I discovered Sunfield which offered lifelong care in a nurturing family environment. The Sunfield team stressed the importance of early intervention. Once I came to terms with the heartbreak of parting with Scott as a weekly boarder, aged 6, I was able to fully appreciate the excellent grounding Scott received from the most amazingly kind and dedicated staff.  When Scott turned 18, he attended another excellent adult facility as a young farmer. However, he missed his friends, so I moved him back to Sunfield Howick for cognitively challenged adults.

Here Scott has blossomed among his friends and a programme which is tailor-made for his needs. The residents participate in a wide array of sporting opportunities, cultural activities, and outings. The Howick community, including local school outreach,  is very involved with the residents and Scott thrives on social interaction. Although Scott has never mastered literacy or numeracy, he is stimulated far more than I could ever manage if I had “home schooled” him.

I feel a huge relief now, knowing that Scott is safe and happy for the rest of his life  and that his sisters who immigrated over 20 years ago for work opportunities, know that their beloved brother is in the very best of compassionate care at Sunfield. Scott is living his best life in a fun-loving, stimulating community.

I would be happy to chat should any parents consider Sunfield for placement . I recommend it highly. My contact can be obtained from Sunfield reception.

— Judy Mackinnon

 

Chat to Don

Have any questions? Call or email our General Manager, Don Tully.

gm@sunfield.co.za
082 801 5931